An article in Nature notes that the National Institutes of Health will invest over $1 billion to research ‘long COVID’ — the long-lasting health effects of a SARS-CoV-2 infection.
People who have experienced COVID-19 and its long-term aftermath, including some researchers, have mobilized to argue that better attention should be paid to post-COVID effects.
Groups are worried about whether and how researchers will take individuals' experiences into consideration, says Parthasarathy. “There is a concern among patients that their experience and knowledge won’t be taken seriously — that in the process of becoming a scientific inquiry, their experiences will not be used to guide the understanding of the condition.”
You can read the article here.